Linda Sue, Rob, Tyler and I talked to the oncologist today. Some confusion over what to do next...I will have 2 more chemo appts. then a CAT Scan and MRI. Then after those results we will decide what the course of actions is- possibly start an oral medication- that would inhibit estrogen production. The IV avastin I get by IV every other appt. has been in the news lately... The FDA is saying it is possibly not working so then insurance and Medicare won't cover it....The dr. said out of pocket costs a year is about $100,000. YIKES.
I received a package in the mail from Tracy, my sisrer-inlaw, Billy's wife. She sent me 3 different comfy caps to wear around the house and possily to bed! I am having trouble keeping caps on my head when I sleep. Two of these caps Tracy sent have ties in the back- which might help with my small head. One of them is white and super soft. It looks so comfy!
How very thoughtful! I guess the hats are handmade at an Artisans Exchange in Oak Park. At home, I never where a wig around- too uncomfortable.
After Chemo today, I slept from 1 until almost 6 pm! Yikes- I have never taken that long of a nap. Mollie Jo isn't in to that long of a nap. I think the boys left at some time, left her out of her cage, tried to block the stairs, but that little devil dog (DD) got around the fence, made her way upstairs and was crying out side my dooor.....true love!
I actually got to go out lasr night with 3 girlfriends to celebrate one of their birthdays! Big news-I had a Blue Moon beer and didn't get an upset stomach! We walked around Oakbrook and I just felt so normal, like a regular person- that is what I am hoping for- just doing normal things with friends, being a mom, wife, sister, aunt, friend, teacher, mentor, friend-nothing special- just a normal everyday person.
Keep shakin' those rosary beads, banging on the gong, saying the prayers- I truly believe all of your positive thoughts are helping.